Talking with Family Members
Talking with Kids
If you are suffering from Lynch Syndrome, each child of yours has a 50% chance of contracting Lynch Syndrome1. While it may seem unnecessary to warn children about a syndrome that has not taken effect, we need to remember the implications of Lynch Syndrome. Disclosing information of a diagnosis is extremely vital for their future well-being and health.
How to talk with kids?
Realize that you know your child best. Disclosing information that is helpful and truthful in nature will only benefit your child and your relationship with your child in the long run. Controlling your tone, facial expressions, and body language will allow your child to react in the best way. Allow your child to trust and confide in you by being open to questions and concerns.
When to talk with kids?
Younger children may not understand the implications of a diagnosis of Lynch syndrome. Therefore, it is recommended to tell children at an age at which they are ready and receptive to this type of information. Older children will most likely have questions and it is vital to answer these as honest as possible. Be clear and simple while assuring them that they will be taken cared for and loved. Offer them time and support to cope with your diagnosis and trust you in this process.
How can I prevent this from happening to my child?
Lynch syndrome requires genetic testing to confirm a definitive diagnosis. Genetic testing for children younger than 18 is not encouraged until they reach adulthood. If positive, precautionary cancer screenings should begin at the appropriate age.
Works Cited
1Support for Families When a Child Has Cancer. (2018, October 15th). Retrieved from National Cancer Institute: https://www.cancer.gov/about-cancer/coping/caregiver-support/parents
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